Malinda Ann Hill will join the Eating Disorders Coalition (EDC) in Washington, D.C. for Advocacy Day 2024. We encourage others to join us, too!
This year, we will be advocating for the following initiatives:
Three partial scholarships will be available to assist with travel and lodging costs. Apply: https://forms.gle/FUatAWknbjavfVPw8. Application closes Monday, March 18, 2024. IMPORTANT DATES & TIMES: Wednesday, May 1st, 6 PM to 7 PM EST: Advocacy 101 Training (virtual). This is an optional training for first time advocates and/or advocates who would like a refresher on in person advocacy days. Wednesday, May 8th:
Information for travel, hotel recommendations, for getting around Washington, D.C., and tips for packing can be found in our resource guide here. PLEASE NOTE: Registering for EDC's Advocacy Day to meet with your legislators is a serious commitment. A great deal of work goes into scheduling the appointments. Please only register if you know you can commit your full day on May 8th. Register here: secure.everyaction.com/ebo_v8dwokePZpT_tzYsAw2
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Malinda Ann Hill is writing an updated version of Leah Connor's "Life as a twin rewarding, despite the occasional confusion" and the working title is "Real Runners of Charlottesville" Life as a twin rewarding, despite the occasional confusion By Leah Hill - October 24, 1991 My Opinion - Daily Collegian As the weeks go by, more people are beginning to recognize me from my columns. Unfortunately, I haven't actually talked to all of these people because some of them have recognized my twin sister -- not me. So, I decided to let everyone know that there is a person out there who resembles me. To be honest, it is more like a warning --I don't think I can be responsible for the actions of my twin sister, Mindy. She might not be so nice, friendly and understanding to the next person who calls her Leah. But who could blame her? Wouldn't you begin to get a little upset and/or have an identity crisis if people who even had classes with you don't remember you as Mindy, but instead ask, "Hey, don't you write for the Collegian?" Personally, I enjoy being a twin. It's usually the first thing I tell people about myself. I figure it is a good conversation starter. If my twin isn't there by my side when I first meet someone, most people ask if we are identical. Here is where I sort of get stuck. There's this genetic thing that I'm not quite sure about so I end up sounding like a complete idiot. "Well, most people think we look alike but, to tell you the truth, I'm not quite sure if the egg split or if there were, in fact, two eggs. I'll have to get back to you on that one." As it is common for those children who aren't the first born, Mindy and I have considerably fewer baby pictures than my older sister Heather. The excuse my parents gave me for this lack of a pictoral history is that they were too busy trying to keep both of us fed and dry. They didn't always have the time to capture the moment with Kodak. Yeah, sure. It wouldn't be so bad if the few photos we do have weren't, well, how should I put this, somewhat ambiguous. The problem is we aren't actually sure who is who. It's always fun having my friends try to guess which baby or toddler is me. However, they are a little disappointed when they expect a definite answer and I regretfully inform them that their guess is as good as mine. But, I shouldn't be so hard on my parents. Mindy and I have had the same problem. Last month, we were looking through some recent pictures and Mindy said, "That's a really good picture of you." At first I agreed with her, but a minute or two later (after realizing that I had never worn that outfit) I said, "Hey Mindy, that's not me, it's YOU!" It was a scary moment. People often ask if we ever dressed alike. When we were little all of our relatives would give us identical outfits. It was always a thrill when we got matching outfits in different colors and had to fight over who got which color. However, as we got older we realized that we would have twice the wardrobe potential if we had different clothes. I must stress the word potential because it's not always feasible to borrow a sweater from your sister when you are having an argument. Finally, most people want to know if I like being a twin. For the most part, it's great. But, this mistaken identity thing, although it is amusing, can get on my nerves. Sometimes it's not worth trying to explain to someone that I am not who they think I am. I just smile and go on my merry way. Other times people will go on talking to me without giving me the chance to say, "Hey, wait a minute, I am NOT Mindy, leave me alone." My freshman year at Pitt I lived with six people and I didn't have the chance to let them all know about Mindy. So for the first few weeks I got the reputation of being unfriendly because I (in reality, Mindy) didn't say hello to them on the street. Therefore, I have been conditioned to say "hi" to people I don't even know just because I don't want them to think that my sister is rude. The most memorable experience of mistaken identity here at Penn State was during the summer at Ritenour. Mindy and I ended up being there at the same time. Mistake. The nurse kindly showed me to the doctor's office. As I nervously sat there I heard all sorts of commotion outside. Then, the nurse came back and said, "Didn't I tell you to go to the room across the hall?" I said no. And then it hit me, she doesn't know who I am. After about fifteen minutes and a mini-conference among the nurse, doctor and a few other people, we got the whole thing straightened out. Ever since then, Mindy and I make sure to schedule appointments on different days. Despite the occasional identity crisis and having to share a birthday, I never regret being a twin. Although even if I did, there really isn't anything I could do about it. Not all twins get along, but Mindy is my best friend. She really understands me and not just because in the eyes of some people she has actually been me. We have a special connection. Therefore, in the hope of keeping my sister's sanity in check (not to mention for other people's safety) I'll give you some tips on telling us apart. If you see "me" carrying an art portfolio, it's Mindy. She's the artist. If you see me in the computer lab, feel free to say "hi" and compliment me on my column. If you see "me" working in The Gap, it's really Mindy. If I'm working in the HUB Eateries, again feel free to say "hi." If, despite these guidelines, you still happen to say "Hi Leah, I like your column," to my sister and she lets you have it, please don't let that stop you from reading my next column. Leah Hill is a junior majoring in women's studies and a Thursday columnist for The Daily Collegian. May 18, 2023 is our 52nd birthday and Malinda Ann Hill will be sharing her story on Capitol Hill.
Join the Eating Disorders Coalition in a VIRTUAL Advocacy Day to help pass legislation to make a difference in the lives of those affected by eating disorders. No experience is needed! You will learn how to share your story in a way that leaves a notable impact. You will be advocating for the Kids Online Safety Act and the Improving Mental Health and Wellness in Schools Act. You can find information about the two bills here. Registration is $10 ($5 for 25 years old and under). If this is inaccessible to you, please reach out to Emily Rosenberg for scholarship opportunities. Registration closes Monday, April 24. IMPORTANT DATES: MANDATORY Training for All Advocates: Tuesday, May 16, 2023, from 6pm to 8pm EDT. Advocacy Day: Thursday, May 18 2023, from 9am-5pm EDT PLEASE NOTE: Registering for the Eating Disorders Coalition Advocacy Day to meet with your legislators is a serious commitment. A great deal of work goes into scheduling the appointments. Please only register if you know you can commit your full day on May 18 and attend the mandatory training on May 16. Michael, Leah Connor’s Irish brother-in-law, died from relapsed childhood leukemia on St. Patrick’s Day 2003. Aileen, our Irish grandmother affectionately known as GG, died from lung cancer on July 18, 2012.
Ten years ago, we deemed ourselves "TWINS RUN IN OUR FAMILY" and joined Team Lemon so we could run their first Bank of America Chicago Marathon together in his memory to support Alex's Lemonade Stand Foundation for Childhood Cancer. Over the years, we’ve continued to run together (Boston Marathon, runDisney, Credit Union Cherry Blossom Ten Mile Run, Charlottesville Women's Four Miler) and solo (Twins Run 50K, Philadelphia Marathon, Blue Cross Broad Street Run, Charlottesville Track Club, Charlottesville Speedsters, Charlottesville Ten Miler, Rivanna Greenbelt Marathon, The San Francisco Marathon, Marine Corps Marathon) to raise awareness and funds for childhood cancer research. As of today, we’ve raised over $7,000 in memory of Michael and GG. We’re extremely grateful for your ongoing support and generous donations over the years. If you can, please consider donating $10 to mark our 10th anniversary with Team Lemon. Thank you. ☘️ It is difficult to admit that I am still struggling greatly with anorexia nervosa. I am so sorry for the pain the illness has caused my friends and family, especially my identical twin, Leah.
Leah gave me a place to crash when I lost my apartment, my job and my health insurance. Thank you, Leah, for your ongoing support and the tough love when I need it. Posted by Leah on 6/21/21: “I wrote this poem in 1985 after having struggled with anorexia nervosa beginning at 11 years old. My twin is still actively battling this deadly disease. I love you, Malinda Ann Hill. ❤️” Reality by Leah Ann Hill "Why do you do this? Do this to our family? to yourself? Why don't you just eat? Just one bite. Please. Please, just one bite. I love you honey. Just eat. Please!" There's no response, The body stiffens No feelings show through the gaunt, lifeless face, Having none means superiority. But that's a lie, You're scared, alone, This urge, this obsession has taken over your life; has cut all ties from friends, family; has destroyed your life. You are hungry, but not just for food, You cry for attention, yearn for their approval, They can't see it though, why can't they tell? "If you eat this I'll get you anything, anything you want." But you don't want anything (anything but your freedom, their love), You've worked too hard for this, You can't give it up, you won't. They can't see it though, why can't they tell? Why can't you? Published in the National Anorexic Aid Society, Inc. Newsletter (April - June 1985) Today is our 51st birthday and I am grateful I had the opportunity to attend Eating Disorders Coalition (@EDCoalition) Virtual Advocacy Day (#EDCHillDay) on Tuesday, May 17. I joined advocates from across the country who shared our experiences with eating disorders and asked Congress to support important legislation. Here is my story that I shared on Capitol Hill yesterday. For more information on how you can help, visit: http://eatingdisorderscoalition.org.
My name is Malinda Ann Hill and I recently moved to Charlottesville, VA after living in Philadelphia for over 20 years. My identical twin was diagnosed with anorexia nervosa when we were only 11 years old. Tomorrow, we turn 51. Forty years ago, eating disorders in children were extremely rare and education of health care providers was nonexistent. Our pediatrician ordered every test imaginable because he had no training on eating disorders and did not recognize that my twin’s drastic weight loss was intentional. Fortunately, my twin recovered. Unfortunately, my battle with anorexia nervosa began when we were 15 and my struggle continues today. Over the past 35 years, there were times when I was severely ill and unable to function. There were also times when I was able to manage my symptoms, allowing me to earn my masters’ degree in marital and family therapy with a specialization in art therapy, pursue a meaningful career as bereavement coordinator at the Children’s Hospital of Philadelphia, raise my daughter on my own, and run marathons with my twin to support Alex's Lemonade Stand Foundation for Childhood Cancer. Since I was unable to access the treatment I needed in my late teens and early twenties, I suffered the devastating mental and physical consequences as a result of surviving decades with an eating disorder. Shortly after the pandemic began in 2020, my eating disorder spiraled out of control. My mental and physical health rapidly declined to the point that I was unable to work and care for my daughter. I knew that I desperately needed help and I had to seek treatment as soon as possible. I feared the pandemic would trigger a mental health crisis and I was correct. After taking 3 months of medical leave of absence from work to participate in a virtual partial hospitalization program, I had to return to work too soon because I could not afford to continue treatment even with health insurance. I did my best to manage my debilitating symptoms on my own but after several months my mental and physical health rapidly deteriorated so I was forced to take another medical leave of absence from work. Several months after returning to treatment, I was notified that the hospital could no longer hold my position while I was on medical leave so I lost my job of nearly 20 years. Subsequently, I lost my health insurance and access to the in-person partial hospitalization program I was attending because it would not accept Medicaid. Over the past 6 months, it has been impossible to access the level of eating disorder treatment I need through Medicaid. I have been able to seek help through multiple medical providers because I have been suffering severe physical consequences as a result of my eating disorder. I am grateful to have a team of medical providers who are compassionate, knowledgeable and aware of the complex mental and physical consequences of eating disorders. Last year, I shared my story for the first time during EDC Virtual Advocacy Day. Although it was difficult for me to admit how much I was struggling, I felt empowered and hopeful after joining other advocates. With all the obstacles I have encountered over the past year, there have been far too many days when I have lost all hope and fear that I will be one of too many who will continue to suffer or die as a result of an eating disorder. Even on my darkest days, I want to do all I can to help others who are at risk or suffering like me. I am grateful for every opportunity to share my story to raise awareness and support. I believe legislation to support education, research, prevention and early intervention is crucial so children, teens and adults will not have to suffer for decades like I have or die as a result of their eating disorders like far too many have. Please co-sponsor and support the Anna Westin Legacy Act and the Kids Online Safety Act so all children and adults suffering or those at-risk for eating disorders have access to the care and understanding they deserve. I am grateful for the opportunity to be an Advocate with the Eating Disorders Coalition.
The Eating Disorders Coalition brings advocates together once a year for national Advocacy Days to educate Members of Congress and push for important policy goals. I will share my story on Capitol Hill during EDC Virtual Advocacy Day on May 17th so I can influence federal policy and make a difference in the lives of those affected by eating disorders. You can also get involved and show your support by sharing information on your social media accounts and contacting your Members of Congress. Sign up to receive a social media tool kit here: http://bit.ly/3KuXUm6 Thank you! Malinda Ann Hill I felt like there was a lot of symbolism in my experience running The Haven 8K Run for Home on Saturday, March 19. I experienced compliments and rejection, recognition and invisibility, joy and sorrow, hope and despair. Pretty intense stuff for a fun run and my first “race” of 2022. I was fortunate to receive a ride to the race with my friend and frequent trivia teammate, Hernan. He was a few minutes early (which I love), but it put me in a panicked scramble to get myself out the door so I forgot my race bib. #RookieMistake I realized I didn’t have my bib as soon as I got out of his car. I didn’t want to be "that person" who has to admit they messed up and then beg for a new number at the registration table, but there I was in that exact situation. I expected this race was going to be challenging because my running pace has slowed significantly and I anticipated seeing people in the running community for the first time in 6 months. Having to start the day by asking for a new bib was not exactly what I had planned in terms of just "laying low." Luckily, Audrey Lorenzoni Sackson was at the registration table and was more than willing to help me with a new bib. When I saw her husband, Stewart, I asked them how married life was going. I remembered the best recommendation I ever got from a couples therapist was to read How to Improve Your Marriage Without Talking About It. I recently gave that book as a wedding present to a close friend because I found it to be so useful and insightful. I ran a couple miles before the race and smiled every time I saw a Ten Miler or other race shirt that I designed. It's the little things that lift my spirits and I felt pure joy when I saw the designs I created being worn by my fellow runners. I greatly appreciate this continued connection with our local running community. My identical twin sister, Malinda Ann, came with us to cheer the runners (and entertain the spectators) as an inflatable T-Rex. I was excited to snap a few photos of her proudly displaying her sign, "You'll be Dino-SORE tomorrow!!" and her "TWINS RUN in our family" tote bag. I started the race off slowly and tried not to pressure myself or worry about my performance. Lately, I’ve been running 12-14 minute miles so my only goal was to run faster than that. It felt good to see familiar faces along the course, to hear personal shout outs (“Go Leah!”) and to receive compliments on my sparkly running skirt (a version of the asexual flag in honor of my daughter). My playlist (RUN FOR HOME PLAYLIST) kept me going and I even passed 5 or so people in the second half of the race which is always great for a boost of confidence. As I approached the finish line, I saw my twin cheering and it made me smile. Mark Lorenzoni called my name as I crossed the finish line and I kept running because it has been very difficult since he walked away from me. I miss his presence in my life and I am sad I had to end my volunteer work with the Charlottesville Track Club. Even though the transition has not been easy, I am grateful for the opportunities I had to help him with the Charlottesville Track Club for more than 13 years and Ragged Mountain Running Shop for over 6 years. While I know it can be uncomfortable, difficult or painful when friendships, partnerships or collaborations end, I understand and accept that some relationships cannot continue for reasons beyond my control. I was lucky to see my friend, Marti, after the race and I got a great photo of her standing beside my twin, the T-Rex. I’ve always appreciated Marti's warmth, compassion, and willingness to lend a hand, especially with the Rivanna Greenbelt Marathon. I thanked her for all she’s done and for being the light when I’ve seen a lot of darkness. I gave her a huge hug and went to get a mocha with extra chocolate and whipped cream at Mudhouse. After the race, I checked the results and saw that I wasn’t listed. At first, I thought it was a blessing in disguise because my time was so much slower than my performance two years ago, the last time the race was in-person. However, I did use the online form to report the issue because I am not ashamed of my time. I’m actually proud of myself for still getting out there when I know I’m not in my best shape and nowhere near my PRs from 2012. Although I’m no longer competitive, I’m still showing up because running has been and continues to be such an important part of my life. I can find happiness and connection in being a part of the communal race experience even when I know I won’t take home an award. I always want to appreciate the joy of running and to support important causes in my community. The Ten Miler is next week. It’ll most certainly be my slowest time ever on the course and I’m looking forward to enjoying every minute I have on the streets of Charlottesville with other runners and community members. Michael, Leah's Irish brother-in-law, died from relapsed childhood leukemia on St. Patrick’s Day 2003.
Ten years ago today, Leah and Malinda Ann joined Team Lemon so we could run our first Bank of America Chicago Marathon together in his memory to support Alex's Lemonade Stand Foundation. Over the years, we’ve continued to run together (Boston Marathon, runDisney, Credit Union Cherry Blossom Ten Mile Run, Charlottesville Women's Four Miler) and solo (Twins Run 50K, Philadelphia Marathon, Blue Cross Broad Street Run, Charlottesville Track Club, Charlottesville Speedsters, Charlottesville Ten Miler, Rivanna Greenbelt Marathon, The San Francisco Marathon, Marine Corps Marathon) to raise awareness and funds for childhood cancer research. As of today, we’ve raised over $7,000 in memory of Michael and our Irish grandmother, Aileen, affectionately known as GG. We’re extremely grateful for your ongoing support and generous donations over the years. Thank you. ☘️ https://www.alexslemonade.org/mypage/1121983 |
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